Donna Dickenson, Project Syndicate
LONDON – In early February 2010, a United States federal
district court in New York began deciding a landmark case as to whether
individuals have a “right to know” about how their own genomes can
dictate their future health. The case,
American Civil Liberties Union v.
Myriad Genetics, may have a tremendous impact on medicine and science.
The
questions on which the case turns are whether genetic patents help or
hamper research, and whether patients should have to pay a license fee
to a biotechnology corporation to be tested for predisposition to
disease.
One of the
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